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Posted: Tue Mar 20, 2007 3:21 pm Subject: My Turn To Ask For Prayer

I have an aunt (who is more like a sister than aunt) who has 3 children, (whom I am more of an aunt to than cousin), 2 with Cystic Fibrosis. The 2 with CF have been pretty sick with flu like symptoms. The older of the 2, the daughter, is doing better, but not 100% yet. She is like 19 or 20. The son, who is the youngest (1 Cool

is not doing so hot. My mom just called me and told me he is in the hospital with only 23% of his lung capasity. He is hooked up to all kinds of things and is on oxygen. He is very weak. This is very dangerous for those with CF. My uncle, the kids' father, said they are very concerned as are the doctors. It is killing me not being there for Robert and the rest of the family. I am very close to all 3 of these kids and like I said, me and my aunt are more like sisters than aunt and niece and we think of each other as sisters because we grew up together. She use to live with us.

In case anyone doesn't know what CF is, it affects the lungs and there is no cure. People with CF are constantly on medication and have a hard time gaining weight. Colds, flues and such can be very dangerous. Now people with CF are living longer and longer. Use to be kids with CF would barely make it out of thier teens. But like I said, it is uncurable.

So please, keep Robert and his family in your prayers. Thanks so much.

Posted: Tue Mar 20, 2007 3:26 pm Subject:

I am so sorry to hear that 2ndband. Of course they will be in my prayers. CF is a horrible disease. My youngest was in and out of hospitals all his like, just with asthma and pneumonia. But one time he made friends with a little boy in there that had CF, the horrible coughing and pain they go through is amazing. Prayers are being offered up!!..KAren Very Happy

Posted: Tue Mar 20, 2007 3:26 pm Subject:

I definately will . . . . I really hope everything works out.

An idea for you - Since you can't go and visit them, what about making a video and sending it to them? If they have a laptop they could take that into the hospital room and play it for him.

Posted: Tue Mar 20, 2007 3:28 pm Subject:

Your family will definitely be in my thoughts and prayers. I will pray for a quick recovery!

Posted: Tue Mar 20, 2007 3:32 pm Subject:

I wish we could do a video for them, but Robert is really out of it right now. I know as soon as something is known that I will get a phone call either from my mom or from my aunt. This has got my son so upset that he has hit something and hurt his hand. He and Robert are pretty tight when they are together. Thanks for the prayers.

Posted: Tue Mar 20, 2007 3:47 pm Subject:

Prayers going up....

Posted: Tue Mar 20, 2007 3:52 pm Subject:

Dang, did not notice the smile face with the glasses in my post....that is not suppose to be there! Have no idea how I go it on there....guess being upset I must have hit it be mistake, so please do not think that it was suppose to be there!!!!

Posted: Tue Mar 20, 2007 3:55 pm Subject:

I'm so observant, I didn't even notice it until you said something Laughing

Karen

Posted: Tue Mar 20, 2007 3:56 pm Subject:

I'm so sorry...I know there is nothing I can say that will make you feel better, but please know that my thoughts and prayers are with you.

Posted: Tue Mar 20, 2007 4:45 pm Subject:

2nband - I am so sorry - the kids on are the pray line as I type this. I know what CF is. When my son was a baby we had a doc test him for CF because of the number upper respiratory infections that he had. I did a lot of research on the disease and all of the studies that were being done at the time. He did not have CF, but was diagnosed with something much rarer. Please keep us posted.