Like to know
Date: Mon, 03/26/2007 - 14:06
I am having a hard time dealing with this but I just wondered if anyone knew of anyone with Adult on set of this For those of you that are unaware of this it comes down to hair loss with no cure and it is not stress related.. the doctors are really not sure why.
It is just something that happens to about 2% of the Population.. How lucky can I get,,
Just wondering if anyone out there knows of anyone.. that I can maybe email with ??? the doctor just talks medical now I need to talk to someone who has been through this or is going through this..it is very depressing and emotional.. and yes I am grateful it wont kill me.. But being bald was not part of my New Job interview suit.. :(
thanks
J
I am sorry to hear about you. There must be some hair loss treat
I am sorry to hear about you. There must be some hair loss treatment for this disease. Check the yellow pages on such treatment centers. I will let you know if I come across such treatment center.
No treatment... No Cure.... This is not just hair loss.. It is
No treatment...
No Cure....
This is not just hair loss.. It is a disease... Not just thining hair..
But thanks anyway
I'm sorry. That must be absolutely devestating. I have heard of
I'm sorry. That must be absolutely devestating. I have heard of the disease, but never known anyone to suffer from it. You are in my thoughts and prayers.
I am certainly sorry to hear about this disease you have...I wil
I am certainly sorry to hear about this disease you have...I will keep you in my prayers...but being that I always like to look on the positive side..Maybe wig shopping will be fun? You can change your hair all the time, color style etc....I dont know was just trying to look at the positive side...sorry
Dont be sorry I know things could be worse.. but today it just d
Dont be sorry I know things could be worse.. but today it just dosent feel like it can get any worse
Have you looked at naaf.org yet? They have information about su
Have you looked at naaf.org yet? They have information about support groups and such in the us. It seems to be a site dedicated totally to what you are going through.
I just read the intro for the site . . . . It seems like a reall
I just read the intro for the site . . . . It seems like a really terrible thing to have.
So you don't have to explain it to anyone, here is what they say about what the disease is:
Quote:
Alopecia areata is a common autoimmune disease that results in the loss of hair on the scalp and elsewhere. It usually starts with one or more small, round, smooth patches. It occurs in males and females of all ages and races, but onset most often occurs in childhood. It is estimated that approximately two percent of the population will be affected at some point in their lives, or over 4.5 million people in the United States. In alopecia areata, the affected hair follicles are mistakenly attacked in groups by a person's own immune system (white blood cells), resulting in the arrest of the hair growth stage. These affected follicles become very small, drastically slow down production, and grow no hair visible above the surface for months or years. The scalp is the most commonly affected area, but the beard or any hair-bearing site can be affected alone or together with the scalp. Some people develop only a few bare patches that regrow hair within a year. In others, extensive patchy loss occurs, and in a few, all scalp hair is lost (referred to as alopecia totalis) or, hair is lost from the entire scalp and body (referred to as alopecia universalis). No matter how widespread the hair loss, the hair follicles remain alive and are ready to resume normal hair production whenever they receive the appropriate signal. In all cases, hair regrowth may occur even without treatment and even after many years. |
sorry having a bad day.. didnt mean to snap.. I will find someo
sorry having a bad day.. didnt mean to snap..
I will find someone to ask my questions too just thought with this many people someone may know someone..
I have a cousin that has it. But she's only 9, so I don't know
I have a cousin that has it. But she's only 9, so I don't know if she'd be good support at her age. I will talk to my aunt tonight and see if she can tell me anything about what to expect if you'd like. I'd think the situations would be different since my cousin is so much younger, and the impact is different for her then it is for you, but it's someone . . . . .
When I was a teenager, I had this very same thing. It eventua
When I was a teenager, I had this very same thing. It eventually went away. Now I have no traces of it. I hope you have the same results I did. All the best to you.
I don't think anyone is faulting you for being short on your res
I don't think anyone is faulting you for being short on your responses . . . . I think we all understand that this day sucks for you. Be as short and as snappy as you'd like.
Get a second opinion
I suggest you get a second opinion. If you are in payday loan distress as I am, your hair loss IS probably the result of stress. I have been to 3 different dermatologists and they have all given me 3 separate diagnoses.
Thank you I have.. and I am out of payday mess.. I wish it were
Thank you I have.. and I am out of payday mess.. I wish it were something else but I accept the diagonise..
From what I have read, it is temporary. Quote:In the majority
From what I have read, it is temporary.
Quote:
In the majority of patients, the hair will regrow completely within 1 year without any treatment. |
So yeah - you will have a time frame that will be difficult. But the odds are that you will be fine in a short time.
I know a doctor who has it. He got it when he was a pre-teen an
I know a doctor who has it. He got it when he was a pre-teen and is in his 40's now, but as he said there are worse things than being bald. Now lets see if we can lift your mood. Just think of all of the different types of wigs you can invest in - you could be a redhead (my choice), blond, brunnett or any other color in between. You could go short, curly, long, braided, banged or parted down the middle. And think of the hats! One for every day of the week and two on sunday. I know that this sounds flip, but 10 years ago my baby sister (30) died of non-hodgekins lymphoma and we only had 9 months with her. She knew that with the chemo she would loose her hair so she shaved her head and we had the greatest time buying wigs and hats - for every occasion. What you are going through is not an easy thing to go through, but I think that you a such a strong person and just look you made it through the pdls - you can do anything.
I agree with getting a second opinion. My son was missed diagnos
I agree with getting a second opinion. My son was missed diagnosed with this a few years ago. After about 6 months and a few doctors, he got the correct diagnosis. It was a form of ring worm that came from a 3rd world country in Western Africa. (Which we never travelled to, LOL). He got this from a girl who was fromt he region where they are carriers, this is how he got it. And armed with the right diagnosis and treatment, (for 1 year, because it is difficult to treat), he was fine. I also knew a girl in high school who had alopecia, she is fine now, with no traces of ever having hair loss.