My Turn To Ask For Prayer
Date: Tue, 03/20/2007 - 15:21
In case anyone doesn't know what CF is, it affects the lungs and there is no cure. People with CF are constantly on medication and have a hard time gaining weight. Colds, flues and such can be very dangerous. Now people with CF are living longer and longer. Use to be kids with CF would barely make it out of thier teens. But like I said, it is uncurable.
So please, keep Robert and his family in your prayers. Thanks so much.
I am so sorry to hear that 2ndband. Of course they will be in my
I am so sorry to hear that 2ndband. Of course they will be in my prayers. CF is a horrible disease. My youngest was in and out of hospitals all his like, just with asthma and pneumonia. But one time he made friends with a little boy in there that had CF, the horrible coughing and pain they go through is amazing. Prayers are being offered up!!..KAren :D
I definately will . . . . I really hope everything works out.
I definately will . . . . I really hope everything works out.
An idea for you - Since you can't go and visit them, what about making a video and sending it to them? If they have a laptop they could take that into the hospital room and play it for him.
Your family will definitely be in my thoughts and prayers. I wil
Your family will definitely be in my thoughts and prayers. I will pray for a quick recovery!
I wish we could do a video for them, but Robert is really out of
I wish we could do a video for them, but Robert is really out of it right now. I know as soon as something is known that I will get a phone call either from my mom or from my aunt. This has got my son so upset that he has hit something and hurt his hand. He and Robert are pretty tight when they are together. Thanks for the prayers.
Dang, did not notice the smile face with the glasses in my post.
Dang, did not notice the smile face with the glasses in my post....that is not suppose to be there! Have no idea how I go it on there....guess being upset I must have hit it be mistake, so please do not think that it was suppose to be there!!!!
I'm so observant, I didn't even notice it until you said somethi
I'm so observant, I didn't even notice it until you said something :lol: Karen
I'm so sorry...I know there is nothing I can say that will make
I'm so sorry...I know there is nothing I can say that will make you feel better, but please know that my thoughts and prayers are with you.
2nband - I am so sorry - the kids on are the pray line as I type
2nband - I am so sorry - the kids on are the pray line as I type this. I know what CF is. When my son was a baby we had a doc test him for CF because of the number upper respiratory infections that he had. I did a lot of research on the disease and all of the studies that were being done at the time. He did not have CF, but was diagnosed with something much rarer. Please keep us posted.
2ndband I am very sorry to hear this. I will add you and your f
2ndband I am very sorry to hear this. I will add you and your family to our prayer list. If you need anything, please let me know.
Will keep you and family on the list. Good luck and god bless.
Will keep you and family on the list. Good luck and god bless.
2nd band, you hang in there, I am sorry to hear that you have su
2nd band, you hang in there, I am sorry to hear that you have such illness in your family. You stay strong, you will be in my thoughts and prayers.
I'll be thinking of you and your family! Keep us updated on the
I'll be thinking of you and your family! Keep us updated on their progress.
Ok, just a little more info that I got last night....Robert has
Ok, just a little more info that I got last night....Robert has lost over 20 pounds and he is coughing up green mucus. He has got some type of spores that has affected his lungs. Lung capacity has gone to 20%. They have him on a very strong antibiotic, but he has to take benedril before they can give him the medicine because he had an allergic reaction to it the first time they gave it to him. He will also be getting some aggressive physical therapy on his chest and back. This has tore my son up because he and Robert are tight. In fact, it upset my son so much that he hit a tree or a board, (not exactly sure what) and hurt his hand. My son is a butt most of the time, but he is very sensative. He is afraid of Robert dying.
Now, more news....the daughter that has CF may be going into the hospital also. Thought she was going better, but she has starting running a high temp and is coughing pretty badly and is feeling very weak. I believe they are taking her in to see the doctor today.
As I hear more, I will let you all know.
Thanks so much for all the prayers. My aunt says thank you too. I told her that there were a lot of people praying for Robert and she started crying and asked me to express her gratitude. I would like to ask that Ida be included in these prayers also. Hopefully things with her will not be as bad.
Thanks all....
Karen
I'm sorry that I didn't see this sooner. I will pray for your f
I'm sorry that I didn't see this sooner. I will pray for your family. Please keep us updated.
Have not heard any more yet, so I guess no news is good news. W
Have not heard any more yet, so I guess no news is good news. Will probably be doing some phone calling when I get home tonight to see what I can find out.
Tell you aunt, the whole family is in my prayers..Take Care..KAr
Tell you aunt, the whole family is in my prayers..Take Care..KAren
I will Karen and thanks. I plan on telling her, if I can reach
I will Karen and thanks. I plan on telling her, if I can reach her tonight, of all the prayers that are going up for the kids.
I really appreciate all of them for my family.
I cannot say thanks enough.
Oh and Karen, I love the name!! It's mine also!
UPDATE
I got a quick call tonight and found out that Robert's sister, Ida, has also been admitted to the hospital. Her lung capacity is 30%. A little better than her brother's but not by much. Looks like they are going to be in the hospital for at least 7 days, providing they improve. Robert is still on oxygen and I believe they were getting ready to put Ida on oxygen also. They have not done a lung capacity test for Robert yet. They are going to try to work down the pure oxygen for him to but looks like that is going to be a long process.
Anyway, that is all I know at this time. This is just breaking my heart...not only for myself, but thinking about my aunt and her husband and their older sister.
Anyway, just wanted to pass that on before I called it a night.
UPDATE!
Talked to my aunt yesterday and the kids are doing a little better. They have taken Ida off of oxygen and Robert is still on oxygen but it is just with the tubes at the nose. Ida had not lost as much weight as Robert, but both have gained a pound or so, not very much, but a little bit. Robert is still being woken up every 4 hours for PT. They are expected to stay in the hospital until the end of the week, providing the continue to improve. So this is good news considering how things were before. As thing progress, will keep everyone posted.